1. Help Cure Duchenne Now, Donate Today

    Posted on December 27, 20136:50 pm

    Help CureDuchenne Now! With only 5 days left in the year, CureDuchenne is doing all it can to raise the dollars needed to fund promising and innovative research to find a cure for Duchenne muscular dystrophy. We have a successful track record of translating promising research into clinical trials, and have funded seven research projects that Read more »

  2. Will you help us Cure Duchenne now?

    Posted on December 20, 20137:05 pm

    My son, Justin Paul Monastesse, was a gift and he lived with Duchenne for more than 25 years. Justin always had a great time even though it took 2 1/2 hours to get him up and ready because of the ventilator and feeding tube. He was off to teach computer classes at his old high Read more »

  3. Current Status of Drisapersen Studies: analyses and assessment of next steps are ongoing

    Posted on December 19, 20134:36 pm

      Dear Patient Group Representative, On the 20th of September this year, we shared the results about our Phase III study (DMD114044) of drisapersen in boys with Duchenne Muscular Dystrophy – we did not see a statistically significant difference in 6 Minute Walk Distance, the primary endpoint,  between the boys who received drisapersen and those Read more »

  4. Tyler Armstrong, 9, Gets Ready to Depart to Argentina to Attempt Record Breaking Climb of Mt. Aconcagua to Benefit CureDuchenne

    Posted on December 6, 201310:41 pm

      Our good friend Tyler Armstrong, 9, of Yorba Linda, Calif., will attempt a record breaking climb of Mt. Aconcagua in Argentina, the highest peak (22,837 ft.) in both the Western and Southern Hemispheres, to raise awareness and fund research to benefit CureDuchenne. Tyler is a hero and inspiration to Duchenne families around the world. Read more »

  5. Singer-Songwriter and American Idol Contestant Sarah Burgess Releases New Song “Run Away” to Benefit Cure Duchenne

    Posted on December 4, 20136:44 pm

    We are delighted that Sarah Burgess, a talented singer-songwriter and contestant on the sixth season of American idol, has written a song to benefit CureDuchenne. Sarah’s brother Jacob lives with Duchenne and was inspired to write the song in honor of her brother and all boys who live with Duchenne. The new song is called Read more »