1. The Run Away Project

    Posted on July 26, 201412:01 am

    We are on Day 17 of the 79 Days of Duchenne. We are amazed by all the talented and caring people who have participated in the 79 Days of Duchenne. Thank you for Sarah Burgess for creating this movement and inspiring others to help spread awareness about Duchenne. For more information and inspiring stories, please check out the Read more »

  2. Faster Cures Innovator Spotlight Features Cure Duchenne

    Posted on July 24, 20145:11 pm

    FasterCures features a Q&A with Debra Miller, founder and CEO of CureDuchenne, in their Innovator Spotlight. FasterCures, a center of the Milken Institute, is an action tank driven by a singular goal – to save lives by speeding up and improving the medical research system. The Q&A highlights CureDuchenne’s successful venture philanthropy model.  It focuses Read more »

  3. Help Accelerate Research by Donating Blood

    Posted on July 21, 201410:31 pm

      Duchenne families: If you have Duchenne muscular dystrophy and are between the ages 18-25 years old, or if you have a son with Duchenne that age, you can help accelerate research by donating blood.  A research group has requested Sanguine to collect blood from donors diagnosed with Duchenne muscular dystrophy. You can donate blood Read more »

  4. Duchenne Duplication and Rare Mutations

    Posted on July 16, 20149:08 pm

    Several years ago, soon after our son, Hawken’s diagnosis of Duchenne, I was at a conference, and full of mutation envy. Our son has a deletion of exon 45 and at that time, the most promising therapy in the pipeline seemed to be PTC124 (ataluren) which would target stopcodon mutations. Many of us were wishing Read more »

  5. Climb to Cure Duchenne: Hike Mt. Adams with Tyler Armstrong August 22-24

    Posted on July 10, 20145:08 pm

    Tyler Armstrong, 10, will be climbing Mt. Adams as a training climb in preparation for reaching the Seven Summits. Tyler has already climbed two of the Seven Summits – Mt. Kilimanjaro and Mt. Aconcagua – to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. Tyler is the Read more »

  6. 79 Days of Duchenne: 79 Videos Raising Awareness to Find a Cure for Duchenne Muscular Dystrophy

    Posted on July 9, 20145:02 pm

    CureDuchenne is pleased to launch the 79 Days of Duchenne project with Sarah Burgess, singer-songwriter and contestant on the sixth season of American Idol. More than 79 talented individuals created 79 unique videos to the song “Run Away” written by Burgess to help raise awareness to find a cure for Duchenne muscular dystrophy. Starting today, Read more »