1. 79 Days of Duchenne Raises Awareness About Rare Disease

    Posted on September 25, 20144:07 pm

      79 Days…79 Videos…More than 79 talented individuals A sincere and heartfelt thank you to Sarah Burgess for her talent, creativity and inspiration in creating the 79 Days of Duchenne project. Every day for the past 79 days a new video about Duchenne muscular dystrophy was launched to the song “Run Away” that Sarah wrote Read more »

  2. Cure Duchenne Has Funded All Types of Duchenne Research

    Posted on September 23, 20145:15 pm

    CureDuchenne is proud to have supported all types of Duchenne research over the past 10 years. That is why CureDuchenne has been a leader in funding exon skipping, stop codon, rare and duplications mutations, utrophin upregulation as well as anti-fibrotic and anti-inflammatory therapies during the past decade. Click here for full image. CureDuchenne’s focus is Read more »

  3. Prosensa Update About Drisapersen & Other Programs Webinar

    Posted on September 22, 20149:24 pm

    UPPMD is hosting a Prosensa Update About Drisapersen & Other Programs webinar on behalf of all of its member organizations worldwide.   Date and Time:  Thursday October 2nd 2014 at 6pm CET (noon Eastern and 9 a.m. Pacific) Speakers:  The webinar will be presented by Anthony Hall MD, Medical Director Medical Affairs of Prosensa and he will Read more »

  4. Prosensa announces commencement of re-dosing of drisapersen in North America in patients with Duchenne muscular dystrophy

    Posted on September 17, 20147:27 pm

    CureDuchenne is delighted to share that Prosensa has begun re-dosing patients. See below for today’s announcement.  We are happy that CureDuchenne funding is helping to move Prosensa’s exon skipping programs forward. Our $7 million collaboration with Prosensa is helping to accelerate access to exon skipping drugs for several mutations for patients who so desperately need it. Read more »

  5. Duchenne Research and Physical Therapy Update – Parent Sessions

    Posted on September 15, 20144:48 pm

      CureDuchenne and the Duchenne Therapy Network are pleased to announce two upcoming parent education sessions featuring a Duchenne research and physical therapy update on September 27 in San Jose, Calif., and on October 17 in Mesa, Arizona.  CureDuchenne Chief Scientific Officer Dr. Mike Kelly will present the most current updates on Duchenne muscular dystrophy Read more »


    Posted on September 7, 20143:53 pm

    Your dollar can save lives… CureDuchenne is pleased to launch the “Dollar 4 Duchenne” campaign today to fund research to find a cure for Duchenne muscular dystrophy.  The “Dollar 4 Duchenne” campaign encourages people to donate one dollar to help fund Duchenne research.  “Dollar 4 Duchenne” is part of a comprehensive CureDuchenne fundraising campaign to Read more »

  7. 79 Days of Duchenne – Sarah Burgess – World Awareness for Duchenne

    Posted on September 6, 20144:51 pm

    Inspired by her brother Jacob, who suffers from Duchenne muscular dystrophy, Sarah Burgess created 79 Days of Duchenne to create world awareness for this disease.  There are 79 exons on the gene that causes Duchenne and Sarah created the concept of highlighting this important number in her video series that launched on July, 9, 2014 Read more »