1. Hope and Gratitude: Moving Closer to a Cure for Duchenne

    Posted on April 28, 20157:13 pm

    As I type this, my heart is filled with hope. A horizon that we could barely see 12 years ago has arrived. When our son Hawken was diagnosed with Duchenne Muscular Dystrophy 12 years ago, we felt lost and scared. By forming CureDuchenne we took on the challenge of finding a cure for this horrible Read more »

  2. The PJ Nicholoff Steroid Protocol

    Posted on April 23, 20159:53 pm

    CureDuchenne Cares is pleased to share important information about steroids use for Duchenne patients.    Use of corticosteroids is part of the standards of care for Duchenne patients. Chronic use of steroids is accompanied by side effects, but rapid withdrawal of steroids can lead to serious, life threatening conditions as well. This was exemplified in Read more »

  3. BioMarin Update on Duchenne Muscular Dystrophy Program

    Posted on April 13, 20159:35 pm

    CureDuchenne is pleased to share the following communication update from BioMarin to the Duchenne community regarding developments of their exon skipping program for exon 51. CureDuchenne has provided extensive support in developing this program throughout the years.  We are delighted that boys will begin redosing.   We would like to update the Duchenne community on Read more »