1. Showing Nepal’s Duchenne Community our Southern California Hospitality

    Posted on October 23, 20158:12 pm

      To turn away from any member of the global Duchenne community would be to turn away from our own here at home. That’s why we at CureDuchenne, the non-profit that’s dedicated to finding a cure, seek out and support Duchenne communities around the world. We are honored to provide much needed support for those Read more »

  2. Speak Up for the Duchenne Community!

    Posted on October 14, 201511:18 pm

      After waiting for a very long time, the Duchenne community now has clarity on the Advisory Committee meetings dates for BioMarin and Sarepta.  BioMarin’s date is November 24, 2015 and Sarepta’s date is January 22, 2016.  Please remember, these dates are tentative until they actually appear on the Federal Registry.  Both of the Ad Read more »