1. We are “All in Building a Bridge over Duchenne”

    Posted on September 21, 20164:02 pm

      Guest blog by Tammy and Scott Henegar Our family’s journey with Duchenne muscular dystrophy started in March 2011 when our 4 ½ year old adventurous and sweet young boy was diagnosed with the heart breaking diagnosis that no parent should have to face.  We were told that Braedan would be facing a life of Read more »

  2. First Drug Approved for Duchenne: A Beacon of Hope for the Duchenne Community

    Posted on September 20, 20165:08 pm

      My husband Paul and I have dreamed of this day since our son Hawken was diagnosed with Duchenne almost 15 years ago! We are overwhelmed with joy to announce that the FDA has officially granted accelerated approval for Eteplirsen for the treatment of Duchenne Muscular Dystrophy. This is the first approved drug-therapy and a Read more »

  3. Spotlight on Dani Trees, PT, CureDuchenne Cares Certified Physical Therapist

    Posted on September 14, 20166:53 pm

      Every Duchenne parent wants to know that their child is in good hands with their medical team. Physical therapy is an important part of that medical team, and Texas physical therapist Dani Trees wants to reassure parents she has the best training necessary to properly care for their child. Dani’s first Duchenne patient came Read more »

  4. Our Journey Dealing With Duchenne

    Posted on September 8, 20167:31 pm

      Guest blog by Maribel and Ramiro Munoz Our son Joshua was born in 2007. Joshua, our oldest son, is an amazing and fun-loving boy. He was diagnosed with Duchenne Muscular Dystrophy in 2013. Duchenne is a progressive muscle degenerative disease that impacts 1 in every 3,500 boys. It starts by limiting their ability to play and run in Read more »