1. Better Designed Clinical Trials Now

    Posted on October 31, 20168:25 pm

      As a parent of a son with Duchenne I have been frustrated that the data presented to the FDA does not match the patient experience.  I personally know so many patients who have been in recent clinical trials that are doing much better than expected and are seeing a slower progression of their disease Read more »

  2. Spotlight on Jerry Hsu, PT, CureDuchenne Cares Certified Physical Therapist

    Posted on October 12, 20164:28 pm

      A physical therapist is required to take on multiple roles while caring for their patients, and this is especially true when treating a complex condition such as Duchenne muscular dystrophy.  It is these multiple roles and complicated diseases that keep Jerry Hsu, an Orange County, California-based physical therapist, excited about his job every day. Read more »

  3. Learn. Engage. Empower.

    Posted on October 10, 20169:15 pm

      Caring for a child with Duchenne can be daunting, complicated, and often times, isolating. But it doesn’t have to be. On October 22, CureDuchenne Cares will hold its inaugural Family Summit bringing together Duchenne families, medical providers and researchers for a daylong event focused on education and fellowship. The goal of this summit is Read more »