Category Archives: Take Action

  1. 21st Century Cures Act Passed by House

    Posted on December 1, 201611:03 pm

      Yesterday the House of Representatives passed the draft of the 21st Century Cures Act. It is slated for a vote in the Senate early next week.       The new draft includes: $4.8 billion in new funding for the National Institutes of Health (NIH) $500 million in new funding for the Food and Read more »

  2. With Gratitude this Thanksgiving

    Posted on November 23, 20164:53 pm

      Thanksgiving is more than a chance to appreciate what we have. It’s also about taking the time to appreciate the people who help us in our journey, those who share in our hopes and dreams, and our struggles and our pain. For all of you, we are full of gratitude. We are filled with Read more »

  3. Showing Nepal’s Duchenne Community our Southern California Hospitality

    Posted on October 23, 20158:12 pm

      To turn away from any member of the global Duchenne community would be to turn away from our own here at home. That’s why we at CureDuchenne, the non-profit that’s dedicated to finding a cure, seek out and support Duchenne communities around the world. We are honored to provide much needed support for those Read more »

  4. Passion Meets Courage

    Posted on September 9, 20153:49 pm

      To say I have witnessed young men and boys with Duchenne face heartbreaking challenges is an understatement. Duchenne is one of the toughest diseases in the world. That’s why when I hear words like courage, I immediately think of our boys with Duchenne. Today I wanted to reflect on very courageous young boy who Read more »

  5. CureDuchenne’s Debra Miller Wins OCBJ Women in Business Award

    Posted on June 26, 20157:56 pm

      On behalf of team CureDuchenne, we are ecstatic to announce that our co-founder and our daily inspiration Debra Miller was presented with the esteemed Women in Business Award to honor her career in finding a cure for Duchenne muscular dystrophy. The Orange County Business Journal’s Women in Business Award is presented to five outstanding Read more »

  6. Mack Brown, Jack Ingram, Matthew McConaughey, Vince Young…and The Revell Family, Champions Fighting to Cure Duchenne

    Posted on May 13, 20154:49 pm

      For some people it takes a trophy or medal to denote a champion. For those in the fight against Duchenne Muscular Dystrophy, there are all kinds of champions and you won’t know them by their trophy. Duchenne parents Tim and Laura Revell are such champions but they didn’t plan it this way. When their Read more »

  7. 79 Days of Duchenne Raises Awareness About Rare Disease

    Posted on September 25, 20144:07 pm

      79 Days…79 Videos…More than 79 talented individuals A sincere and heartfelt thank you to Sarah Burgess for her talent, creativity and inspiration in creating the 79 Days of Duchenne project. Every day for the past 79 days a new video about Duchenne muscular dystrophy was launched to the song “Run Away” that Sarah wrote Read more »

  8. DOLLAR 4 DUCHENNE – SAVING THE LIVES OF CHILDREN

    Posted on September 7, 20143:53 pm

    Your dollar can save lives… CureDuchenne is pleased to launch the “Dollar 4 Duchenne” campaign today to fund research to find a cure for Duchenne muscular dystrophy.  The “Dollar 4 Duchenne” campaign encourages people to donate one dollar to help fund Duchenne research.  “Dollar 4 Duchenne” is part of a comprehensive CureDuchenne fundraising campaign to Read more »

  9. Cure Duchenne to Celebrate 10-Year Anniversary at Champions to Cure Duchenne Gala

    Posted on March 12, 20144:23 pm

    CureDuchenne will host our annual Champions to CureDuchenne Newport Beach Gala on Saturday, March 29 at the Balboa Bay Club & Resort. The event will celebrate CureDuchenne’s 10 years of successfully advancing Duchenne research. We’ll honor Doug Freeman, the business leader who helped shape our venture philanthropy model; dine on a delicious meal created by Read more »

  10. Tyler Armstrong, 9, Gets Ready to Depart to Argentina to Attempt Record Breaking Climb of Mt. Aconcagua to Benefit CureDuchenne

    Posted on December 6, 201310:41 pm

      Our good friend Tyler Armstrong, 9, of Yorba Linda, Calif., will attempt a record breaking climb of Mt. Aconcagua in Argentina, the highest peak (22,837 ft.) in both the Western and Southern Hemispheres, to raise awareness and fund research to benefit CureDuchenne. Tyler is a hero and inspiration to Duchenne families around the world. Read more »

  11. Singer-Songwriter and American Idol Contestant Sarah Burgess Releases New Song “Run Away” to Benefit Cure Duchenne

    Posted on December 4, 20136:44 pm

    We are delighted that Sarah Burgess, a talented singer-songwriter and contestant on the sixth season of American idol, has written a song to benefit CureDuchenne. Sarah’s brother Jacob lives with Duchenne and was inspired to write the song in honor of her brother and all boys who live with Duchenne. The new song is called Read more »

  12. Thank you Fergie for helping Cure Duchenne!

    Posted on September 5, 201310:50 pm

    Yesterday, Fergie – a Grammy award-winning singer/songwriter, and new mom! -  joined the ranks of talented and respected celebrities we love.  Over the last few years, Clay Matthews, Ryan Getzlaf, Mack Brown and Scott Niedermayer have spoken out publicly in support of CureDuchenne.  We are very touched by Fergie’s support. Fergie is appearing in a Read more »