Tag Archives: corticosteriod

  1. An Open Letter to the Duchenne Community

    Posted on February 13, 201710:39 pm

      CureDuchenne is sharing an expanded and updated open letter to the Duchenne community from Marathon Pharmaceuticals. An Open Letter to the Duchenne Community Dear Members of the Duchenne Community: I want to thank you all for your support and encouragement over the last several years as Marathon worked to bring EMFLAZA™ (deflazacort) through the Read more »

  2. An Open Letter to the Duchenne Community

    Posted on 6:59 pm

      CureDuchenne is sharing an expanded and updated open letter to the Duchenne community from Marathon Pharmaceuticals. An Open Letter to the Duchenne Community  Dear Members of the Duchenne Community: I want to thank you all for your support and encouragement over the last several years as Marathon worked to bring EMFLAZA™ (deflazacort) through the Read more »

  3. FDA Approves EMFLAZA (deflazacort) … Our Experience With Deflazacort

    Posted on February 10, 20174:03 pm

      We are delighted that the U.S. Food and Drug Administration (FDA) has approved EMFLAZA (deflazacort) for the treatment of Duchenne. This is wonderful news for the Duchenne community to have access to this drug in the U.S. We are grateful for Marathon Pharmaceuticals for conducting the multiple studies necessary for FDA approval. When your Read more »

  4. Additional Information about EMFLAZA (deflazacort) for Duchenne Patients under the Age of Five

    Posted on 1:49 am

      Today, the FDA approved the use of EMFLAZA (deflazacort) for Duchenne patients over the age of five years old.  It is routine for the FDA to designate specific patient populations on the “label” that are approved to receive a drug.  The reason the FDA excluded younger patients for EMFLAZA is because there has not Read more »