Tag Archives: physical therapy

  1. Physical Therapist Haydee Bustos is a Pillar of Strength in the Duchenne Community

    Posted on February 22, 20174:12 pm

      Haydee Bustos has a passion for helping kids, and through her experience as a physical therapist, she discovered an even deeper desire to help kids with Duchenne muscular dystrophy. A fatal genetic disease, Duchenne muscular dystrophy causes muscle deterioration leaving patients, mostly boys, wheelchair bound by their mid-teens and claims their lives by their Read more »

  2. Physical Therapist Darcy Peach Provides Peace of Mind to Duchenne Families

    Posted on January 26, 20173:51 pm

      Darcy Peach discovered her calling to become a physical therapist while undergoing treatment for a volleyball injury in high school. During her treatment sessions, Darcy’s physical therapist took a great deal of care and time in treating her.  She witnessed first-hand the therapeutic and relationship building benefits that occur during the process of physical Read more »

  3. Bonding Through Stretches

    Posted on December 7, 20165:26 pm

      Guest blog by Paul Miller Our son Hawken was diagnosed with Duchenne in the fall of 2002.  Debra and I rolled up our sleeves and began a journey we had not anticipated.   We found there were many variables to managing this disease.  One of these is physical therapy.  Maintaining the health of the muscles Read more »

  4. Spotlight on Sandi Preston, PT, CureDuchenne Cares Certified Physical Therapist

    Posted on November 16, 20166:36 pm

      Understanding a patient’s motivation for treatment is the key for a physical therapist to empower that patient for the best outcome. For a patient with Duchenne muscular dystrophy, a terminal disease that deteriorates muscle tissue, this empowerment can be the difference between more cherished ambulatory time or losing their drive for therapy altogether. In Read more »

  5. Spotlight on Jerry Hsu, PT, CureDuchenne Cares Certified Physical Therapist

    Posted on October 12, 20164:28 pm

      A physical therapist is required to take on multiple roles while caring for their patients, and this is especially true when treating a complex condition such as Duchenne muscular dystrophy.  It is these multiple roles and complicated diseases that keep Jerry Hsu, an Orange County, California-based physical therapist, excited about his job every day. Read more »

  6. Navigating College, Living with Duchenne

    Posted on August 16, 20167:19 pm

      Guest blog by Hawken Miller For those with Duchenne Muscular Dystrophy the experience and education of a four-year university is likely within your grasp, and being away from home is a definite possibility. I’ll admit, I had my own second thoughts about going off to college, but it is worth it once you move Read more »

  7. Giving our Sons with Duchenne the Best Care Possible

    Posted on March 18, 20163:16 pm

        When our son, Hawken, was diagnosed 13 years ago, we were told to go home and love your son…there is nothing you can do.  Those doctors were wrong, there was a lot to be done. Our family was blessed from the beginning to have Jennifer Wallace, PT, come into our lives from day Read more »

  8. Transfer Techniques to Protect Duchenne Patients and Caregivers

    Posted on November 3, 20156:13 pm

      Moving someone who has Duchenne from one location to another is no easy task, especially when considering patient and caregiver safety. Physical therapist,  owner at Duchenne Therapy Network and CureDuchenne Cares program director, Jennifer Wallace approaches this topic in her recent blog video highlighting the importance of using proper techniques when performing transfers. Transfers Read more »

  9. Expanding and Improving Duchenne Standard of Care

    Posted on September 23, 20154:01 pm

      As a mom of a son with Duchenne, I understand the importance of physical therapy in this disease.  Early after Hawken’s diagnosis, we were referred to a physical therapy facility that knew very little about the nuances of physical therapy for Duchenne.  The PT’s in that state supported clinic actually used strength building exercises Read more »

  10. Self-Stretches for Duchenne

    Posted on February 17, 20154:33 pm

      As part of CureDuchenne Cares – a physical therapy, education and outreach program for the Duchenne community – we are pleased to share information on a self-stretching routine for those living with Duchenne muscular dystrophy. CureDuchenne and the Duchenne Therapy Network created a new video blog and a printable handout on stretching. Performing a Read more »

  11. Duchenne Research and Physical Therapy Update – Parent Sessions

    Posted on September 15, 20144:48 pm

      CureDuchenne and the Duchenne Therapy Network are pleased to announce two upcoming parent education sessions featuring a Duchenne research and physical therapy update on September 27 in San Jose, Calif., and on October 17 in Mesa, Arizona.  CureDuchenne Chief Scientific Officer Dr. Mike Kelly will present the most current updates on Duchenne muscular dystrophy Read more »