CureDuchenne Cares Advocacy Efforts Succeed in Adding Duchenne to the Social Security Administration Compassionate Allowance List (CAL) Social Security Disability Insurance (SSDI) benefits are a financial lifeline for millions of […]
CureDuchenne Ventures’ early funding of Edgewise in September of 2019 is returning more good news. In November of 2020, Edgewise began its Phase 1 clinical trial on EDG-5506, an experimental […]
Brigham and Women’s Hospital Becomes Only US Birth Hospital with a Program Offering Parents a Choice to Have Supplemental Newborn Screening for Duchenne Muscular Dystrophy **UPDATE** In part as a […]
CureDuchenne Link™ is a Centralized Hub with Data and Biosamples for Researchers Around the World Newport Beach, CA (June 18, 2021) – CureDuchenne, a leading global nonprofit focused on finding […]
Currently, there is a clear paucity of information to guide exercise prescription for patients with DMD. While clinical concerns based on the notion that excessive exercise may exacerbate the disease […]
I left the Doctor’s room with a packet of flu meds for Jason and an unexpected post it sticker handed to me by the GP that read Duchenne Muscular Dystrophy. […]
My wife Laura, found CureDuchenne by doing a google search around Duchenne organizations that aligned with our Christian Faith. The search results led us to the Miller family who turned […]
Our son, Grant, was almost 6 years old when he was diagnosed in January of 2017 with Duchenne Muscular Dystrophy. Our daughter Wrenna, and Grant’s best friend, was 4. To […]
Where to start? Darren is adopted. He came to us at 2 months old. I immediately requested any and all evaluations available because mom had been using meth while pregnant […]
