Community. Support. Knowledge. These are the things families and professionals worldwide seek – especially when faced with a rare disease like Duchenne. That’s why, in partnership with Duchenne Hungary, CureDuchenne […]
Adaptive Sports for People with Duchenne The camaraderie developed among teammates in sports helps participants form strong bonds with other players. Even individual sports have adaptations that could prove to […]
An interview with the Millers and Ryan Getzlaf discussing the Getzlaf Golf Shootout that originally aired on NBC4
Those gestures that you call “little things” are not little to us. The way you text or call just to check in makes me feel cared for. The cards you send when something heartbreaking has happened, makes me feel loved. The prayers you say for us when we aren’t even aware, the hugs, the long conversations we have – those are not little in my eyes. In fact, those are the very things that often keep me afloat somedays, and remind moms like me that we are not alone.
Accessible gaming for people with Duchenne Individuals with Duchenne are living at a time when technology is helping to make the digital world more accessible and the real world more […]
Kevin Flanigan, MD is a leading expert in the development of gene therapies for Duchenne, and the director of the Center for Gene Therapy in the Abigail Wexner Research Institute […]
Happy Father’s Day to all of the dads out there who have either found a way – or made one – so that their kids can experience their best life.
– Paul Miller, aka Hawken’s dad
Enjoy this hand-picked selection of books about Duchenne muscular dystrophy for children and parents. If you would like to add a book to this list, please let us know! Email: […]
Insurance companies continue to deny complex medical equipment for patients whom it is medically necessary. The rules keep changing. It can be difficult to keep up with the latest equipment […]
