Emerging guidance offers cautious optimism—here’s what parents and caregivers should know For years, families affected by Duchenne muscular dystrophy have heard a consistent message: “be cautious with exercise, don’t overdo it.” That guidance came from a […]
CureDuchenne Invests in Satellos to Advance a Mutation-Independent Duchenne TherapyLink to press release CureDuchenne is pleased to announce that it has participated in the Satellos Bioscience public offering, supporting the […]
The addition of Duchenne muscular dystrophy (DMD) to the Recommended Uniform Screening Panel (RUSP) marks a meaningful step forward in the effort to diagnose Duchenne earlier and connect families to […]
Rosalia es una orgullosa mamá de Joe (8), quien vive con Duchenne, y de Sophia (6). Ella misma vive con distrofinopatía, lo que hace que esta misión sea especialmente cercana […]
DUCHENNE TRAVEL TIPS:
The Golden Rule is Plan Ahead
Contact the airline ahead of time to approve medical or mobility devices.
Request special travel assistance like checking a scooter or power wheelchair.
Coordinate local transportation and other logistics at your destination.
Research ride options and reserve or rent a wheelchair-accessible van in advance.
World Duchenne Day 2025
In 2018, CureDuchenne was the only Duchenne-focused organization to invest in Avidity Biosciences, recognizing the potential of their novel RNA-targeting approach for individuals with Duchenne muscular dystrophy long before it reached clinical trials. […]
Record-Breaking Impact During World Duchenne Awareness Month Each September, World Duchenne Awareness Month shines a spotlight on the urgent needs and powerful momentum within our community. This year, CureDuchenne’s Physical and Occupational Therapy Certification […]
CureDuchenne Fuerza 2025, hosted by the CureDuchenne International Program on October 25, 2025, brought together more than 400 attendees with the goal of improving care for individuals with Duchenne and Becker muscular dystrophy. Over […]
