CureDuchenne is pleased to share the latest update to patient groups from Prosensa, which outlines their progress to date, as well as future plans. CureDuchenne announced earlier in the week our […]
Yesterday Prosensa and CureDuchenne announced an extension of our collaboration and a path to provide access to four experimental drugs for Duchenne patients. Ten years ago, CureDuchenne provided funding to […]
We are very excited to see that Dr. Kevin Flanigan’s work on a rare Duchenne mutation, a duplication on exon 2, was published in Nature Medicine. This prestigious magazine reported […]
CureDuchenne is pleased to share the following information from Sarepta Therapeutics. They provided a summary of the regulatory developments and clinical updates. Sarepta is dedicated to helping DMD patients and […]
We are on Day 17 of the 79 Days of Duchenne. We are amazed by all the talented and caring people who have participated in the 79 Days of Duchenne. Thank you […]
FasterCures features a Q&A with Debra Miller, founder and CEO of CureDuchenne, in their Innovator Spotlight. FasterCures, a center of the Milken Institute, is an action tank driven by a […]
Duchenne families: If you have Duchenne muscular dystrophy and are between the ages 18-25 years old, or if you have a son with Duchenne that age, you can help […]
Several years ago, soon after our son, Hawken’s diagnosis of Duchenne, I was at a conference, and full of mutation envy. Our son has a deletion of exon 45 and […]
Tyler Armstrong, 10, will be climbing Mt. Adams as a training climb in preparation for reaching the Seven Summits. Tyler has already climbed two of the Seven Summits – Mt. Kilimanjaro and […]
