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X-WR-CALDESC:Events for CureDuchenne
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260905T180000
DTEND;TZID=America/Los_Angeles:20260905T210000
DTSTAMP:20260804T172214Z
CREATED:20260107T013903Z
LAST-MODIFIED:20260804T172214Z
UID:40756-1788631200-1788642000@cureduchenne.com
SUMMARY:DINNER SESSION: Westmont\, NJ
DESCRIPTION:COMMUNITY DINNER SESSION: Westmont\, NJ\nJoin us for a casual three-hour Duchenne community dinner in \nWestmont\, NJ\, on Saturday evening to discuss your family’s story\, health and wellness\, coping\, and overall disease management. \nDinner is complimentary. This session is offered to the community at no charge thanks to our sponsors. \n\n\nTreno Pizza Bar\n233 Haddon Avenue\nWestmont\, NJ 08108 \n\nSeptember 5\, 2026\n6:00 PM-9:00 PM\n\nREGISTER HERE
URL:https://cureduchenne.com/event/dinner-session-new-york/
CATEGORIES:Community Events
ATTACH;FMTTYPE=image/png:https://cureduchenne.com/wp-content/uploads/2026/01/NJ.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260910T160000
DTEND;TZID=America/Los_Angeles:20260910T170000
DTSTAMP:20260731T004658Z
CREATED:20260730T234511Z
LAST-MODIFIED:20260731T004658Z
UID:41858-1789056000-1789059600@cureduchenne.com
SUMMARY:VIRTUAL MEET UP: ADULT DUCHENNE CAREGIVER CONNECT - SHARING THE JOURNEY
DESCRIPTION:VIRTUAL MEETUP:\nADULT DUCHENNE CAREGIVER CONNECT: SHARING THE JOURNEY\nJoin us each month for a supportive conversation designed for caregivers of adults living with Duchenne. This virtual gathering offers a safe\, welcoming space to share experiences\, discuss the unique challenges of caregiving\, exchange practical advice\, and connect with others who understand the journey. Whether you’re looking for encouragement\, resources\, or simply a place to be heard\, we’re here to support one another—because no one should have to navigate this journey alone. \n\n\n\nDate & Time\nSep 10\, 2026 04:00 PM  in  Pacific Time (US and Canada)\n\nREGISTER HERE\n 
URL:https://cureduchenne.com/event/webinar-adult-duchenne-caregiver-connect-support-with-cureduchenne/
LOCATION:Virtual
CATEGORIES:Community Events
ATTACH;FMTTYPE=image/png:https://cureduchenne.com/wp-content/uploads/2026/07/MM_Ask-me-anything-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260926T080000
DTEND;TZID=America/Los_Angeles:20260926T160000
DTSTAMP:20260803T223909Z
CREATED:20260205T225043Z
LAST-MODIFIED:20260803T223909Z
UID:40905-1790409600-1790438400@cureduchenne.com
SUMMARY:WORKSHOP: San Diego\, CA
DESCRIPTION:San Diego\, CA WORKSHOP\nJoin us for a full-day event focused on improving the quality of life for individuals living with Duchenne and Becker muscular dystrophy. \nWestin San Diego Bayview\n1051 Columbia St\, San Diego\, CA 92101\nSeptember 26\, 2026 |  8 AM – 4 PM \n\nREGISTER HERE \n  \nINSIGHTFUL PRESENTATIONS ON:\nSTANDARDS OF CARE\n• Current care guidelines\n• Disease management quality of life \nRESEARCH AND CLINICAL TRIALS\n• Drug development pipeline\n• Clinical trial updates\n• Industry representatives \nFAMILY SUPPORT\n• Social-emotional wellness\n• Communication tips\n• Caregiver support \nPHYSICAL THERAPY AND MEDICAL EQUIPMENT\n• CureDuchenne Certified PT® instruction stretching and\nequipment demo \nCURE DUCHENNE OPEN HOUSE\n• Local resources for families\n• Equipment vendors\n• pharma/biotech representatives \nTHIS WORKSHOP IS OFFERED TO THE COMMUNITY AT NO CHARGE\, THANKS TO OUR SPONSORS!\nFree childcare provided by a professional nanny service from 8 AM to 4 PM local time.\nWe provide activities\, games\, and movies for the kids\, as well as breakfast\, lunch and snacks. \nBreakfast and lunch are provided.
URL:https://cureduchenne.com/event/workshop-san-diego-ca/
CATEGORIES:Community Events
ATTACH;FMTTYPE=image/png:https://cureduchenne.com/wp-content/uploads/2026/02/San-Diego-web-workshop.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261003T180000
DTEND;TZID=America/New_York:20261003T210000
DTSTAMP:20260804T173755Z
CREATED:20260206T003142Z
LAST-MODIFIED:20260804T173755Z
UID:40909-1791050400-1791061200@cureduchenne.com
SUMMARY:DINNER SESSION: Albany\, NY
DESCRIPTION:Community Dinner Session Albany\, NY\nOctober 3\, 2026 |  6:00 PM-9:00 PM \nJoin us for a casual three-hour Duchenne community dinner in Syracuse | Albany\, NY on Saturday evening to discuss your family’s story\, health and wellness\, coping\, and overall disease management.\n\nDinner is complimentary. This session is offered to the community at no charge thanks to our sponsors.\n677 Prime\n677 Broadway\, Albany\, NY 12207 \nREGISTER HERE
URL:https://cureduchenne.com/event/dinner-session-syracuse-albany-ny/
CATEGORIES:Community Events
ATTACH;FMTTYPE=image/png:https://cureduchenne.com/wp-content/uploads/2026/02/Albany-NY-Web-comm-dinner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/Beulah:20261017T080000
DTEND;TZID=America/North_Dakota/Beulah:20261017T160000
DTSTAMP:20260818T180018Z
CREATED:20260206T003740Z
LAST-MODIFIED:20260818T180018Z
UID:40923-1792224000-1792252800@cureduchenne.com
SUMMARY:WORKSHOP: Indianapolis\, IN
DESCRIPTION:Indianapolis\, IN WORKSHOP\n\nJoin us for a full-day event focused on improving the quality of life for individuals living with Duchenne and Becker muscular dystrophy. \nOctober 17\, 2026 |  8 AM – 4 PM \n\n\n\n\nWestin Indianapolis\n241 W Washington Street\nIndianapolis\, IN 46204Link to register: cvent.me/LaNqw2 \n\n\n\n\n\n\n\n\n  \nINSIGHTFUL PRESENTATIONS ON:\nSTANDARDS OF CARE\n• Current care guidelines\n• Disease management quality of life \nRESEARCH AND CLINICAL TRIALS\n• Drug development pipeline\n• Clinical trial updates\n• Industry representatives \nFAMILY SUPPORT\n• Social-emotional wellness\n• Communication tips\n• Caregiver support \nPHYSICAL THERAPY AND MEDICAL EQUIPMENT\n• CureDuchenne Certified PT® instruction stretching and\nequipment demo \nCURE DUCHENNE OPEN HOUSE\n• Local resources for families\n• Equipment vendors\n• pharma/biotech representatives \nTHIS WORKSHOP IS OFFERED TO THE COMMUNITY AT NO CHARGE\, THANKS TO OUR SPONSORS!\nFree childcare provided by a professional nanny service from 8 AM to 4 PM local time.\nWe provide activities\, games\, and movies for the kids\, as well as breakfast\, lunch and snacks. \nBreakfast and lunch are provided.
URL:https://cureduchenne.com/event/workshop-indianapolis-in/
CATEGORIES:Community Events
ATTACH;FMTTYPE=image/png:https://cureduchenne.com/wp-content/uploads/2026/02/Indianapolis-IN-web-workshop.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20261107T180000
DTEND;TZID=America/Los_Angeles:20261107T210000
DTSTAMP:20260206T195633Z
CREATED:20260206T005950Z
LAST-MODIFIED:20260206T195633Z
UID:40932-1794074400-1794085200@cureduchenne.com
SUMMARY:DINNER SESSION: Los Angeles\, CA
DESCRIPTION:Community  Dinner Session in Los Angeles\, CA\nNovember 7\, 2026  |  6:00 PM-9:00 PM \nJoin us for a casual three-hour Duchenne community dinner in LA on Saturday evening to discuss your family’s story\, health and wellness\, coping\, and overall disease management.\n\n\nDinner is complimentary. This session is offered to the community at no charge thanks to our sponsors.\nVenue TBA \nRegister HERE
URL:https://cureduchenne.com/event/dinner-session-los-angeles-ca/
CATEGORIES:Community Events
ATTACH;FMTTYPE=image/png:https://cureduchenne.com/wp-content/uploads/2026/02/Los-Angeles-CA-Dinner-session-web.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20261114T080000
DTEND;TZID=America/Los_Angeles:20261114T160000
DTSTAMP:20260206T200114Z
CREATED:20260206T010624Z
LAST-MODIFIED:20260206T200114Z
UID:40936-1794643200-1794672000@cureduchenne.com
SUMMARY:WORKSHOP: Sacramento\, CA
DESCRIPTION:WORKSHOP in Sacramento\, CA\nJoin us for a full-day event focused on improving the quality of life for individuals living with Duchenne and Becker muscular dystrophy. \nNovember 14\, 2026  |  8 AM – 4 PM \nVenue: TBA \nREGISTER HERE \n  \nINSIGHTFUL PRESENTATIONS ON:\nSTANDARDS OF CARE\n• Current care guidelines\n• Disease management quality of life \nRESEARCH AND CLINICAL TRIALS\n• Drug development pipeline\n• Clinical trial updates\n• Industry representatives \nFAMILY SUPPORT\n• Social-emotional wellness\n• Communication tips\n• Caregiver support \nPHYSICAL THERAPY AND MEDICAL EQUIPMENT\n• CureDuchenne Certified PT® instruction stretching and\nequipment demo \nCURE DUCHENNE OPEN HOUSE\n• Local resources for families\n• Equipment vendors\n• pharma/biotech representatives \nTHIS WORKSHOP IS OFFERED TO THE COMMUNITY AT NO CHARGE\, THANKS TO OUR SPONSORS!\nFree childcare provided by a professional nanny service from 8 AM to 4 PM local time.\nWe provide activities\, games\, and movies for the kids\, as well as breakfast\, lunch and snacks. \nBreakfast and lunch are provided.
URL:https://cureduchenne.com/event/workshop-sacramento-ca/
CATEGORIES:Community Events
ATTACH;FMTTYPE=image/png:https://cureduchenne.com/wp-content/uploads/2026/02/Sacramento-CA-web-workshop.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20261205T080000
DTEND;TZID=America/Los_Angeles:20261205T160000
DTSTAMP:20260206T195236Z
CREATED:20260206T195207Z
LAST-MODIFIED:20260206T195236Z
UID:40940-1796457600-1796486400@cureduchenne.com
SUMMARY:WORKSHOP: Albuquerque\, NM
DESCRIPTION:Albuquerque\, NM Workshop\nJoin us for a full-day event focused on improving the quality of life for individuals living with Duchenne and Becker muscular dystrophy. \nDecember 5\, 2026  |  8 AM – 4 PM \nVenue: TBA \nREGISTER HERE \n  \nINSIGHTFUL PRESENTATIONS ON:\nSTANDARDS OF CARE\n• Current care guidelines\n• Disease management quality of life \nRESEARCH AND CLINICAL TRIALS\n• Drug development pipeline\n• Clinical trial updates\n• Industry representatives \nFAMILY SUPPORT\n• Social-emotional wellness\n• Communication tips\n• Caregiver support \nPHYSICAL THERAPY AND MEDICAL EQUIPMENT\n• CureDuchenne Certified PT® instruction stretching and\nequipment demo \nCURE DUCHENNE OPEN HOUSE\n• Local resources for families\n• Equipment vendors\n• pharma/biotech representatives \nTHIS WORKSHOP IS OFFERED TO THE COMMUNITY AT NO CHARGE\, THANKS TO OUR SPONSORS!\nFree childcare provided by a professional nanny service from 8 AM to 4 PM local time.\nWe provide activities\, games\, and movies for the kids\, as well as breakfast\, lunch and snacks. \nBreakfast and lunch are provided.
URL:https://cureduchenne.com/event/workshop-albuquerque-nm/
CATEGORIES:Community Events
ATTACH;FMTTYPE=image/png:https://cureduchenne.com/wp-content/uploads/2026/02/Albuquerque-NM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20261212T180000
DTEND;TZID=America/Los_Angeles:20261212T210000
DTSTAMP:20260206T195911Z
CREATED:20260206T195911Z
LAST-MODIFIED:20260206T195911Z
UID:40943-1797098400-1797109200@cureduchenne.com
SUMMARY:DINNER SESSION: Orange County\, CA
DESCRIPTION:Orange County\, CA Community Dinner Session\nDecember 12\, 2026  |  6:00 PM-9:00 PM \nJoin us for a casual three-hour Duchenne community dinner in Orange County\, CA\, on Saturday evening to discuss your family’s story\, health and wellness\, coping\, and overall disease management.\n\nDinner is complimentary. This session is offered to the community at no charge thanks to our sponsors.\nVenue TBA \nRegister HERE
URL:https://cureduchenne.com/event/dinner-session-orange-county-ca/
CATEGORIES:Community Events
ATTACH;FMTTYPE=image/png:https://cureduchenne.com/wp-content/uploads/2026/02/OC-DS.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20270527
DTEND;VALUE=DATE:20270531
DTSTAMP:20260522T133836Z
CREATED:20260522T133833Z
LAST-MODIFIED:20260522T133836Z
UID:41287-1811376000-1811721599@cureduchenne.com
SUMMARY:FUTURES 2027
DESCRIPTION:Marriott Marquis San Diego Marina\n333 W Harbor Dr\, San Diego\, CA 92101\n\n\n\n\n\n\n\n\n\n\n\nMay 27 – May 30\, 2027\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nGet ready for the CureDuchenne 2027 FUTURES National Conference – San Diego\, CA \nThis annual event is dedicated to providing education\, connection\, and hope to the entire Duchenne community. Join us as we work together to transform the future of Duchenne research—and get ready to bust some serious dance moves! \n\n\n\n\n\n\n\n\n\n\nREGISTER TODAY TO GET THE EARLY BIRD RATES \n 
URL:https://cureduchenne.com/event/futures-2027/
LOCATION:Marriott Marquis San Diego Marina\, 333 W Harbor Dr.\, San Diego\, CA\, 92101
CATEGORIES:Community Events
ATTACH;FMTTYPE=image/png:https://cureduchenne.com/wp-content/uploads/2026/05/FUTURES-2027.png
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