A note from Debra

Swimming for Duchenne

Posted on August 20, 2014 7:02 pm

 

CureDuchenne and the Duchenne Therapy Network are pleased to provide a video and educational information on the swimming activities for those with Duchenne muscular dystrophy.

The pool is great for those with Duchenne.  It provides many benefits including:

             buoyancy to reduce the stress on muscles and joints

             mild resistance for low grade muscle work

             respiratory exercise to maintain or increase capacity and breath control

             a great place for social interaction with others

 

This video demonstrates some of the therapeutic swimming programs for those with Duchenne. Learn more pool activities.

Prosensa is working towards long-term access to drisapersen

Posted on August 15, 20144:27 pm

CureDuchenne is pleased to share the latest update to patient groups from Prosensa, which outlines their progress to date, as well as future plans. CureDuchenne announced earlier in the week our $7 million collaboration with Prosensa to help speed access to treatments for Duchenne muscular dystrophy.   Dear Patient Group Representative, As previously communicated, Prosensa received Read more »

Accelerating Access to Duchenne Drug Candidates

Posted on August 12, 20144:23 pm

Yesterday Prosensa and CureDuchenne announced an extension of our collaboration and a path to provide access to four experimental drugs for Duchenne patients. Ten years ago, CureDuchenne provided funding to Prosensa which allowed the company to move forward with their preclinical work and translate their exon skipping compounds into human clinical trials.  Since September 2013, Read more »