A note from Debra

The Run Away Project

Posted on July 26, 2014 12:01 am

We are on Day 17 of the 79 Days of Duchenne. We are amazed by all the talented and caring people who have participated in the 79 Days of Duchenne. Thank you for Sarah Burgess for creating this movement and inspiring others to help spread awareness about Duchenne. For more information and inspiring stories, please check out the most current 79 Days of Duchenne newsletter.

If you missed any of the videos this week check out the links below.






Faster Cures Innovator Spotlight Features Cure Duchenne

Posted on July 24, 20145:11 pm

FasterCures features a Q&A with Debra Miller, founder and CEO of CureDuchenne, in their Innovator Spotlight. FasterCures, a center of the Milken Institute, is an action tank driven by a singular goal – to save lives by speeding up and improving the medical research system. The Q&A highlights CureDuchenne’s successful venture philanthropy model.  It focuses Read more »

Help Accelerate Research by Donating Blood

Posted on July 21, 201410:31 pm

  Duchenne families: If you have Duchenne muscular dystrophy and are between the ages 18-25 years old, or if you have a son with Duchenne that age, you can help accelerate research by donating blood.  A research group has requested Sanguine to collect blood from donors diagnosed with Duchenne muscular dystrophy. You can donate blood Read more »