A note from Debra

Self-Stretches for Duchenne

Posted on February 17, 2015 4:33 pm

 

As part of CureDuchenne Cares – a physical therapy, education and outreach program for the Duchenne community – we are pleased to share information on a self-stretching routine for those living with Duchenne muscular dystrophy.

CureDuchenne and the Duchenne Therapy Network created a new video blog and a printable handout on stretching. Performing a daily stretching routine is the most effective way to prevent loss of flexibility. When done correctly, it can manage muscle contractures and ultimately improve and prolong physical ability and independence.   

Watch the video and learn more about:

  • Hamstring Stretch
  • Achilles Self Stretch
  • Soleus Stretch
  • Wrist Extension Stretch
  • Wrist and Finger Extension
  • Neck Extensor
  • Trunk Rotation

For more information or questions, please contact info@duchennetherapynetwork.com.

Our next in-person parent education session will be held in Toledo, Ohio, on March 14.  If you are in the area, please register for this free informational session geared toward parents and caregivers.

The goal of CureDuchenne Cares is to improve outcomes, extend ambulation and provide guidance on standards of care for all Duchenne patients, while drugs are being developed to treat this disease. If you have topics you would like to see addressed, please e-mail alicia@cureduchenne.org.

Update on Phase 3 tadalafil DMD study: enrollment completed

Posted on January 13, 20158:48 pm

CureDuchenne is pleased to share the following update to the Duchenne muscular dystrophy community from Lilly regarding the ongoing Phase 3 trial of tadalafil in boys with Duchenne. Eli Lilly and Company is pleased to announce the completion of enrollment of the Phase 3 trial of tadalafil for patients with Duchenne muscular dystrophy (DMD). The Read more »

Keeping the Promise for our Children with Duchenne

Posted on January 12, 20158:25 pm

Today, CureDuchenne announced a $1 million investment in Capricor Therapeutics for a clinical trial to test its CDC (adult) stem cells as a cardiac therapy for Duchenne patients. CureDuchenne’s mission is our name…to cure Duchenne.  Duchenne affects so many parts of the body and cardiac failure is the primary cause of death in this disease.  Read more »