A note from Debra

Power Wheelchair Options for Duchenne Muscular Dystrophy Patients

Posted on November 20, 2014 5:03 pm

 

Duchenne Therapy Network and CureDuchenne released their newest video blog that highlights power wheelchair options available for Duchenne muscular dystrophy patients.  Here we provide tips on what to look for when choosing a wheelchair.

Front Wheel Drive

Pros:

  • Maneuverability
  • Performance on terrain
  • Space for foot movement

Cons:

  • Tracking issues at high speeds

Mid-Wheel Drive

Pros:

  • Maneuverability
  • Turning radius is small
  • Great in tight spaces

Cons:

  • Difficulty with terrain

 

Rear-Wheel Drive

Pros:

  • Fair terrain performance
  • Good stability at high speed

Cons:

  • Large turning radius
  • Difficult maneuvering in tight spaces

 

Power Seating Options

  • Recline
  • Tilt
  • Seat elevator
  • Leg elevator

Standing Power Options

Benefits:

  • Less transfer required when stander is built into the chair
  • Joint range of motion
  • Weight bearing
  • Bone density
  • Gastro-intestinal health
  • Social interaction

 

Please watch the video for more information.

 

TACT TREAT–NMD Review

Posted on October 31, 201410:15 pm

  Last weekend, I had the honor, along with Dr. Mike Kelly, CureDuchenne’s Chief Scientific Officer, and other TACT members, to review Duchenne research projects. CureDuchenne was able to look out for the best interest of Duchenne patients by providing a scientific, patient organization and parent perspective.    The projects that we reviewed were: FibroGen Inc, Read more »

Adapting Physical Education for Duchenne Boys

Posted on October 17, 20144:24 pm

Those who live with Duchenne muscular dystrophy have physical activity limitations that need to be addressed at school. It is important for Duchenne boys to be included without further damaging their muscles.    Parents need to work with their schools to assist with decision making regarding the most appropriate activities for your student to participate Read more »