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New Year Letter – Santhera to DMD Community
We’re pleased to share this letter and news from our partner Santhera about their plans for 2019! For more than 10 years, Santhera has been working on treatments for DMD, […]
Two Families Building a Future Through Shared Tragedy
In November 2016, two San Diego families received the same devastating news about their little boys. Four-year-old Yannick Etienne and 5-year-old Marko Filenko were each diagnosed with Duchenne muscular dystrophy, […]
Steroid Use in Duchenne: Expert Dialogue on Latest Data
Healthcare professionals, personal caregivers and family members of those with Duchenne muscular dystrophy gathered to learn about new data and best practices for steroid use in Duchenne at a webinar […]
West Virginia Mom of Duchenne Boy Struggles to Make Ends Meet
Like many mothers of boys with muscular dystrophy, Deborah Hall hasn’t had an easy life. Hall, the daughter of a chemical engineer and a stay-at-home mom, was one of six […]
The Gene-Edited Babies And CRISPR-Cas9 Controversy, Explained
CRISPR-Cas9 has the ability to change everything about our world. Here’s why it’s awesome and why it’s scary. Outrage continues to grow over the news that Chinese scientist He Jiankui […]
CureDuchenne Webinar with Avidity Biosciences
CureDuchenne Webinar with Avidity Biosciences, a privately held biotech company pioneering a new class of precision medicines based upon antibody-oligonucleotide conjugates, to brief the Duchenne community about Avidity’s research in […]
CureDuchenne and Baebies: How a nonprofit and biotech startup are fighting ‘to save babies’
DURHAM – Back in 2003, new mother Debra Miller with her husband, Paul, founded CureDuchenne after their only son was diagnosed with Duchenne, a rapidly progressing form of muscular dystrophy. No […]
CureDuchenne and Avidity Biosciences Host Webinar on Pre-clinical Development of Novel Exon Skipping Therapies for Duchenne Muscular Dystrophy
Newport Beach, Calif. (November 5, 2018) – CureDuchenne, a global leader in research, patient care, and innovation in improving and extending the lives of those living with Duchenne muscular dystrophy […]
Avidity Biosciences Receives Investment from CureDuchenne
Investment advances pre-clinical development of novel exon skipping therapies for treatment of patients with Duchenne muscular dystrophy October 17, 2018 08:00 AM Eastern Daylight Time LA JOLLA, Calif.–(BUSINESS WIRE)–Avidity Biosciences, […]