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Determination and Duchenne – Inspiration from my son on Father’s Day
Each year on Father’s Day, I like to take a moment and reflect on the memories I have with my family, specifically with my son Hawken. Being a father to […]
Dear Dad – A Father’s Day Message from Sons to Dads
Father’s Day is the perfect time to reflect on all that our fathers do for us. For boys with Duchenne, it’s a day that they get to cherish their fathers […]
RASRx Receives Orphan Drug Designation from FDA
NEWPORT BEACH, Calif., June 15, 2017 – RASRx announced today that the United States Food and Drug Administration (FDA) has granted an Orphan Drug Designation (ODD) for its compound RASRx1902 […]
CureDuchenne to Host Webinar with Santhera Pharmaceuticals on SIDEROS Trial
NEWPORT BEACH, Calif., June 14, 2017 – CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, will host a webinar with Santhera Pharmaceuticals on […]
Beyond the Lab – CureDuchenne Ventures Helps Accelerate Academic Research into Promising Medical Care for Patients
Academia has long been an incubating source of incredible medical breakthroughs. Sometimes it takes a little push and risk-taking to take that progressive research out of the lab and into […]
Meet Alex Chiabai – First Boy in Canada to Begin Drisapersen Redosing
Five years ago, 12-year-old Alex Chiabai was one of the first boy in Canada to begin taking drisapersen, a promising drug that provided a glimmer of hope for Alex and […]
CureDuchenne Continues to Support Research for Duplication Mutations in Duchenne, and with Dr. Flanigan From Nationwide Children’s Hospital with a Coalition of Families Impacted by the Disease
NEWPORT BEACH, Calif., June 8, 2017: CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, continues to support Dr. Kevin Flanigan from Nationwide Children’s […]
PTC /Ataluren – FDA AdCom Meeting September 28, 2017
CureDuchenne is pleased to see that the FDA will hold an Advisory Committee Meeting (AdCom) for PTC Therapeutics’s drug Ataluren. We are hopeful for a full and fair review which […]
CD Access Began Redosing Drisapersen in Canada
For Doug Penner, now 14, being part of the original drisapersen trial was a hopeful time; the drug enabled him to go on four-mile walks, climb stairs and even jump. […]