alejandro.sanabria@americaneagle.com, Author at CureDuchenne

CureDuchenne Crusaders to Run Tinker Bell Half Marathon to Raise Funds to Find Cure for Duchenne

January 9, 2014

The CureDuchenne Crusaders will run the Tinker Bell Half Marathon on January 19 to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, a progressive muscle-wasting disease that impacts 1 in 3,500 boys. Since 2007, the CureDuchenne Crusaders have proudly worn their bright green capes as theyÌ¢âÂã¢ve walked, ran and climbed mountains to raise funds for Duchenne research.

Tyler Armstrong, 9, Summits Mt. Aconcagua and Raises Awareness to Benefit CureDuchenne

December 31, 2013

Nine-year-old Tyler Armstrong of Yorba Linda, Calif., became the youngest person to summit Mt. Aconcagua in Argentina when he reached the top of the 22,837 ft. mountain on Christmas Eve. Tyler climbed Mt. Aconcagua to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. Tyler arrives home from his adventure today.

Help Cure Duchenne Now, Donate Today

December 27, 2013

Help CureDuchenne Now! With only 5 days left in the year, CureDuchenne is doing all it can to raise the dollars needed to fund promising and innovative research to find […]

Will you help us Cure Duchenne now?

December 20, 2013

My son, Justin Paul Monastesse, was a gift and he lived with Duchenne for more than 25 years. Justin always had a great time even though it took 2 1/2 […]

Current Status of Drisapersen Studies: analyses and assessment of next steps are ongoing

December 19, 2013

Dear Patient Group Representative, On the 20th of September this year, we shared the results about our Phase III study (DMD114044) of drisapersen in boys with Duchenne Muscular Dystrophy […]

SUMMIT ANNOUNCES FIRST PATIENT DOSED IN A PHASE 1B CLINICAL TRIAL OF SMT C1100 FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY

December 9, 2013

Summit (AIM: SUMM), a drug discovery and development company advancing therapies for Duchenne Muscular Dystrophy (‘DMD’) and C. difficileinfection, announces that the first DMD patient has been enrolled and dosed in a Phase 1b clinical trial of the oral, small molecule utrophin modulator SMT C1100.

Tyler Armstrong, 9, Gets Ready to Depart to Argentina to Attempt Record Breaking Climb of Mt. Aconcagua to Benefit CureDuchenne

December 6, 2013

Our good friend Tyler Armstrong, 9, of Yorba Linda, Calif., will attempt a record breaking climb of Mt. Aconcagua in Argentina, the highest peak (22,837 ft.) in both the […]

Singer-Songwriter and American Idol Contestant Sarah Burgess Releases New Song “Run Away” to Benefit Cure Duchenne

December 4, 2013

We are delighted that Sarah Burgess, a talented singer-songwriter and contestant on the sixth season of American idol, has written a song to benefit CureDuchenne. Sarah’s brother Jacob lives with […]

Singer-Songwriter and American Idol Contestant Sarah Burgess Releases New Song “Run Away” to Benefit CureDuchenne

December 4, 2013

CureDuchenne, a national nonprofit organization that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, announced today that Sarah Burgess, singer-songwriter and contestant on the sixth season of American Idol, released a new song called Ì¢âÂÒRun AwayÌ¢âÂÌ_ to benefit CureDuchenne.