Drisapersen/GSK Update

Dear Debra, Since my last email you may have seen a recent story that appeared on an investment tips website regarding a presentation on drisapersen made at the Duchenne Parent […]

FDA Webinar on Accelerated Approval Summary

    CureDuchenne was honored to host a webinar today, in collaboration with PPMD and MDA to discuss accelerated approval for drugs for rare diseases.   Dr. Robert Temple, director of the […]

February 2013 FDA Webinar

CureDuchenne was honored to host a webinar on February 20, 2013, in collaboration with PPMD and MDA, to discuss accelerated approval for drugs for rare diseases. Dr. Robert Temple, director […]

Hockey Players Raise Funds to Find a Cure for Duchenne Muscular Dystrophy During Weekend Ice Duchenne Event to Benefit CureDuchenne

Western Michigan University is hosting a weekend long Ì¢‰âÒIce DuchenneÌ¢‰âÂÌ_ fundraiser on February 22-23 to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. The Western Michigan University Bronco hockey team, a member of the Central Collegiate Hockey Association (CCHA), will sell raffle tickets to raise money and help find a cure for Duchenne. To promote the cause, Scott Niedermayer, one of the most decorated hockey players of all-time, is also featured in a public service announcement that is planned to debut with the event.

CureDuchenne Hosts Accelerateed Access Webinar with the FDA

CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, will host a webinar on accelerated access for drug approvals with the Food and Drug Administration (FDA) on February 20, 2013 at 4 p.m. EST for Duchenne parents and advocates. Dr. Robert Temple, Deputy Center Director for Clinical Science, Center for Drug Evaluation and Research, FDA, will present and discuss expedited pathway programs, legislative initiatives and expanded access to investigational drugs. As the most common and lethal form of muscular dystrophy, Duchenne impacts 1 in 3,500 boys. There is currently no cure for Duchenne.

CureDuchenne Hosts Accelerated Access Webinar with the FDA

CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, will host a webinar on accelerated access for drug approvals with the Food and Drug Administration (FDA) on February 20, 2013 at 4 p.m. EST for Duchenne parents and advocates. Dr. Robert Temple, Deputy Center Director for Clinical Science, Center for Drug Evaluation and Research, FDA, will present and discuss expedited pathway programs, legislative initiatives and expanded access to investigational drugs. As the most common and lethal form of muscular dystrophy, Duchenne impacts 1 in 3,500 boys. There is currently no cure for Duchenne.

Champions to CureDuchenne Newport Beach Gala Raises $800,000 to Find a Cure for Duchenne Muscular Dystrophy

CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, held its annual Champions to CureDuchenne Newport Beach Gala on Saturday, February 9 at the Balboa Bay Club & Resort. The event raised almost $800,000 toward research to find a cure for Duchenne, a progressive muscle-wasting disease that impacts 1 in 3,500 boys.

Dallas Sports Celebrities Are Bowling to CureDuchenne to Raise Funds to Find a Cure for Duchenne Muscular Dystrophy

CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, will host a Bowling to CureDuchenne fundraising event on February 10 at Lewisville Lanes in Lewisville, Texas. Sports celebrities from the Dallas Cowboys, Texas Rangers and an Olympic Champion including Rocket Ismail, Tony Banks, Larry Brown, Billy Joe DuPree, Jose Guzman, Pete Hunter, Robert Newhouse, Nate Newton, Carly Patterson, Drew Pearson, Preston Pearson, Jeff Russell, Don Stanhouse and Everson Walls will bowl with community members to benefit CureDuchenne.