
Heaton Family
Our son Grant is six years old and was diagnosed with Duchenne Muscular Dystrophy at age three. Duchenne is a genetic disease that destroys muscle, all of them. We are […]
Our son Grant is six years old and was diagnosed with Duchenne Muscular Dystrophy at age three. Duchenne is a genetic disease that destroys muscle, all of them. We are […]
Napa in Newport Celebrates a Decade of Impact and
Raises More Than $1.35M for CureDuchenne
Capricor Therapeutics Announces Positive Type-B Meeting with FDA for CAP-1002 Program for Duchenne Muscular Dystrophy
AUSTIN, Texas., April 16, 2024 – CureDuchenne, a leading global nonprofit focused on finding and funding a cure for Duchenne muscular dystrophy, and the Revell family of Austin hosted the 15th annual fundraiser gala, Champions to CureDuchenne: Disco for Duchenne, on April 6, 2024. The event raised $385,000 to benefit CureDuchenne as it accelerates scientific research and pioneers educational programs to care for families affected by Duchenne, a progressive, fatal disease affecting 300,000 worldwide.
Edgewise Therapeutics Announces Positive Two-Year Topline Results from the ARCH Open Label Trial of Sevasemten (EDG-5506) in Adults with Becker Muscular Dystrophy (Becker)
NEWPORT BEACH Calif., March 8, 2024 – Marking a significant milestone, Napa in Newport benefiting CureDuchenne will commemorate its 10th anniversary on April 20, 2024, at the luxurious Pendry Newport Beach. Esteemed for its unparalleled selection of Napa Valley’s finest wines, this year’s gala is a celebration of a decade-long journey of philanthropy, community, and exquisite wine. The gala showcases a Grand Tasting, dining tables hosted by vintners, a handcrafted dinner with carefully selected wine pairings, and extraordinary auction items including rare wines, luxurious vacations, and one-of-a-kind experiences. The evening is set to be more intimate than ever before, with limited attendance and new, luxurious weekend ticket packages that include hotel accommodations and amenities.
This past year the CureDuchenne Clinic at the Neurology & Neuromuscular Care Center, led by Dr. Diana Castro in Denton, TX, has been marked by unparalleled advancements, notably with the […]
Meet members of the ITF Therapeutics team to learn more about their organization and next steps to support the availability of DUVYZAT.
Miami, FL, March 25, 2024 – CureDuchenne and the Finazzo family of Miami hosted “Champions in Miami” on Saturday, March 9, 2024 at the Kimpton Surfcomber in Miami Beach, bringing together Miami’s top business leaders, entrepreneurs, influencers, and philanthropists for a night of delicious flavors, cocktails, cigars, and live entertainment. All event proceeds benefit CureDuchenne, a global leader in research, patient care, and innovation for improving and extending the lives of those living with Duchenne muscular dystrophy.