Summer activities can often be focused on sports, waterparks, and physical activity, but that can leave out individuals with Duchenne and other physical disabilities. Accessible gaming can be another way […]
Many people with Duchenne or physical disabilities play video games because it’s a way to stay competitive in a less physical environment and connect with friends who may live far […]
While there is currently no cure for Duchenne muscular dystrophy, gene therapy has the potential to target the underlying genetic cause of many mono genetic diseases and could potentially benefit […]
CureDuchenne Cares had its inaugural visit to San Juan, Puerto Rico, on June 10 for a workshop on current standards of care for Duchenne, research and clinical trials, family support, […]
Below, you’ll find some accessories that can make life using a wheelchair easier. It’s important to note, like people, all chairs are made differently. What might work for one wheelchair or person might not work for another. Be sure to measure your wheelchair dimensions and compare them with the specs of the product to ensure it will be a good fit before purchasing.
Paige Lembeck, PhD, a pediatric psychologist, spoke to the CureDuchenne community in a webinar about how they can best manage stress, anxiety, and depression for themselves and their children. Stress […]
Doug Levine, PT, a physical therapist instructor with CureDuchenne, and Kerry Johnson, senior director of community engagement, visited India in February to educate physical therapists, doctors, physical and occupational therapy […]
Hawken Miller, who brings his journalism experience and the perspective of having Duchenne himself, writes about how he tries to focus on the things that he can do rather than what he can’t in this CureDuchenne blog. It helps him live a more purposeful and joyful life.
The last day of FUTURES 2023 was jam-packed with sessions focused on how people with Duchenne can use their lived experience to help others going through the same challenges. A Game of Life encouraged people to share tips and tricks that work for them, breakout sessions met people wherever they were at in their Duchenne journey, and the closing session was an opportunity for everyone to share what was on their mind.
