Video Archives - Page 11 of 13 - CureDuchenne

Navigating Duchenne treatment: AGAMREE & Catalyst Pathways

Join us for this pre-recorded presentation and Q&A discussing to learn about a new FDA-approved treatment for Duchenne muscular dystrophy. During the session, Catalyst Pharmaceuticals will provide an overview of how this novel corticosteroid works and its efficacy in Duchenne. You will also learn about the journey to comprehensive support and access through the well-established Catalyst Pathways patient support program.

Alison Anderson, MS, CGC

Medical Affairs Director

Catalyst Pharmaceuticals

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Next Generation Technology Panel

A brief overview of the rationale behind next generation technology, as well as presentations from the companies in this space. Moderated discussion included.

Erin Brubaker

Chief Operating Officer

Code Bio

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Michael Kelly, PhD

Chief Scientific Advisor

CureDuchenne

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Joe McIntosh, MD

Chief Medical Officer

Gennao Bio

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Genine Winslow, MSc

CEO & President

Chameleon Biosciences

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NS Pharma

NS Pharma Industry Presentation:
VILTEPSO®(Viltolarsen) Overview

Shannon Lienert, MD
Medical Science Liaison, Medical Affairs

Shannon Lienert MD

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Palliative Care and Duchenne Muscular Dystrophy

This resource provides an introduction to palliative care’s function, benefits, and how it fits into the multidisciplinary care model for Duchenne.

Tom McNalley, MD

Associate Professor of Pediatrics

University of California San Francisco Benioff's Children's Hospitals

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Panel de discusión: El impacto de Duchenne en la familia

Este panel discutirá los portadores genéticos de Duchenne, cómo comunicar el diagnóstico a otros y las experiencias con la planificación familiar.

Gloria Orozco

Presidenta, Coalición Latinoamericana DMD/DMB

Coalición Latinoamericana DMD/BMD

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Graciela Méndez

Fundadora

Enlace Distrofia Muscular Duchenne Becker AC

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Sarah G. Seth, MPH, CGC

Consejera Genética Certificada

Hospital de Niños de San Antonio

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Pathway to Success

This resource discusses managing Duchenne in a school setting: IEP vs. 504 Plans, modifications and accomodations in a school setting, and communicating with educators about Duchenne.

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

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Physical Therapy: Early Intervention

This resource discusses the benefits of early intervention therapy, what to expect from a PT/OT, basic activity modifications, stretching and orthoses for children.

Doug Levine, PT

CureDuchenne Certified Physical Therapist

CureDuchenne

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Pilares del viaje de transición

Esta sesión está destinada a familias/cuidadores de adolescentes y adultos con Duchenne. Cubre cuatro pilares del viaje transicional de Duchenne: Continuidad de la atención, Planificación del estilo de vida, Éxito financiero y Escuela/Carrera/Pasatiempos, y es seguido por una sesión de discusión/Preguntas y respuestas.

Pradeep P.A. Mammen, MD, FACC, FAHA

Associate Professor of Medicine and Co-Director

Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center, Director for Translational Research for the Advanced Heart Failure and Transplant Cardiology Program, UT Southwestern Medical Center

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Kent Williams, MD

Pediatric Gastroenterologist

Nationwide Children's Hospital

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Jennifer Shumsky, BSN, RN, CHCO, PACS

Director, Payer Relations

Little Hercules Foundation

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Hawken Miller

Content Strategist

CureDuchenne

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Pilares del viaje temprano

Esta sesión está dirigida a familias/cuidadores de niños y adolescentes con Duchenne. Cubre cuatro pilares del viaje temprano de Duchenne: atención multidisciplinaria, esteroides, nutrición y participación en ensayos clínicos, y es seguido por una sesión de discusión/preguntas y respuestas.

Kindann Fawcett, PhD

Post Doctoral Fellow

University of Arkansas for Medical Sciences

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Barry Byrne, MD, PhD

Professor and Associate Chair

University of Florida, Department of Pediatrics

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Dr. Aravindhan Veerapandiyan

Pediatric Neurologist

Arkansas Children's Hospital

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Diana Castro, MD

Associate Professor of Pediatrics, Neurology and Neurotherapeutics

University of Texas Southwestern

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