CureDuchenne Link Presentation
An overview of CureDuchenne Link.
Joanna Kemp, BSN, RN
Senior Director of Clinical Operations | Director, CureDuchenne Link
CureDuchenne

An overview of CureDuchenne Link.
Senior Director of Clinical Operations | Director, CureDuchenne Link
CureDuchenne
This resource provides guides to proper massage and aquatic therapy techniques, safe transfers, and stretching routines approved by our CureDuchenne Certified Physical Therapists.
Hear from CureDuchenne’s Chief Scientific Advisor on our research support and priorities.
Wave will provide an overview of initial clinical trial results for WVE-N531 in individuals with Duchenne muscular dystrophy who are amenable to exon 53 skipping, as well as an overview of the potentially registrational FORWARD-53 study.
Chief Development Officer
Wave Life Sciences
¿Que sigue? Discusión sobre tecnología de próxima generación.
This resource presents a conversation about family dynamics, communication strategies and how to cope as a family unit navigating a Duchenne diagnosis.
Social Worker and Neuro-behavioral Health Specialist
University of Utah Health
This resource presents information on how to cope with mental heath issues like anxiety and PTSD after a medical emergency.
This resources provides a introduction to the common multidisciplinary care team for Duchenne and their individual functions, as well as tips on coordinating this team-based approach.
Child Neurologist and Neuromuscular Section Head
Children’s Hospital of Philadelphia
This resource presents information on the clinical trial process, common clinical trial terms, updated trial processes due to telehealth, and more.