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Video
Recursos de fisioterapia de CureDuchenne
Este recurso proporciona información sobre las actividades en la piscina y las rutinas de estiramiento adecuadas.
Programa de fisioterapia certificado por CureDuchenne
REGENXBIO
RGX-202: REGENXBIO’s investigational gene therapy for the treatment of Duchenne Muscular Dystrophy presented by: Johannaz (Naz) Dastgir, DO, Senior Director, Clinical Development Lead at REGENXBIO
A program update on RGX-202, REGENXBIO’s investigational gene therapy program for the treatment of Duchenne.
Contact: Duchenne@regenxbio.com or patientadvocacy@regenxbio.com
Johannaz Dastgir, DO
Senior Director, Clinical Development Lead
REGENXBIO
Video
Santhera
Santhera Industry Presentation
Shabir Hasham
Global Program Lead and Head of Medical Affairs
Santhera Pharmaceuticals
Video
Stretching Demonstration: Appropriate Exercise
Our CureDuchenne Certified Physical Therapists talk about appropriate exercise for all mobility levels.
Jennifer Wallace Valdes, PT
CureDuchenne Certified Physical Therapist
CureDuchenne Physical Therapy Program
Video
Stretching Demonstration: Lower Extremities
Our CureDuchenne Certified Physical Therapists demonstrate at-home stretching techniques.
Video
Stretching Demonstration: Upper Extremeties
Our CureDuchenne Certified Physical Therapists demonstrate at-home stretching techniques.
Video
Success at School
An interactive presentation focused on defining and building your team at school, addressing the nuances of an IEP or 504 plan for an individual with Duchenne, and a role-playing exercise on how to effectively communicate your family’s needs in a school meeting.
Sheryl Marrazzo
Duchenne Mother, Grandmother and Advocate
4 Jake's Sake | CureDuchenne
Video
The Benefits of Corticosteroids Along the Duchenne Journey
CureDuchenne is joined by Dr. Aravindhan Veerapandiyan, a Pediatric Neurologist from Arkansas Children’s Hospital, and Sheryl Marrazzo, a mother, grandmother and advocate in the Duchenne Community, for a 1-hour webinar on corticosteroids. This webinar discusses the role of corticosteroids in the Duchenne standards of care, highlights the effects of steroids after loss of ambulation, and includes a discussion on how corticosteroids play a role in the family unit over time.
Sheryl Marrazzo
Duchenne Mother, Grandmother and Advocate
4 Jake's Sake | CureDuchenne
Dr. Aravindhan Veerapandiyan
Pediatric Neurologist
Arkansas Children's Hospital
Video
