2024 FUTURES Steroid Use

Breakout Session: A Steroid Discussion, One Disease, Many Paths

With more choices available, what should families consider? A panel breakout session to help families navigate the steroid journey, make informed choices, and proactively respond to side-effects.

Diana Castro, MD

Associate Professor of Pediatrics, Neurology and Neurotherapeutics

University of Texas Southwestern

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Nat Nasomyont

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Sheryl Marrazzo

Duchenne Mother, Grandmother and Advocate

4 Jake's Sake | CureDuchenne

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Patricia Brown

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2024 FUTURES – Action is Therapy

Action is Therapy: Getting Involved With CureDuchenne Why I…fundraise, advocate, attend events, volunteer, engage with CureDuchenne. An overview of CureDuchenne Programs and the champions who are working to Cure Duchenne.

Paul and Laura Heaton

Calves to Cure DMD

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Sheryl Marrazzo

Duchenne Mother, Grandmother and Advocate

4 Jake's Sake | CureDuchenne

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2024 FUTURES Keynote with Dr. Peter Marks, M.D., Ph.D

Dr. Peter Marks, M.D., Ph.D., director of the Center for Biologics Evaluation and Research (CBER) at the FDA, was our keynote speaker. CBER oversees the regulation and approval of all cell and gene therapies, including Sarepta’s Elevidys for 4-5-year-olds with Duchenne.

Dr. Peter Marks, M.D., Ph.D.

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2023 FUTURES Breakout Session: Growth and Transformation (ages 9-16)

Let’s discuss:

  • Growing pains and puberty
  • ​Introducing wheelchairs and equipment
  • ​Preparing for a bright future: confidence, independence, and hobbies
  • Neurology concerns
  • Cardiology concerns
  • Pulmonology concerns
  • Managing Mobility

Sheryl Marrazzo

Duchenne Mother, Grandmother and Advocate

4 Jake's Sake | CureDuchenne

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Danielle Forrest, OTR, OTD

Occupational Therapist III

Children’s Health and Rehabilitation Services

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Dr. Aravindhan Veerapandiyan

Pediatric Neurologist

Arkansas Children's Hospital

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Oscar "Hank" Mayer, MD

Medical Director, Pulmonary Function Testing Laboratory Children's Hospital of Philadelphia

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Merick Yamada, MD

Pediatric Cardiologist Fetal Care Center Dallas | Neurology and Neuromuscular Care Center

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2023 FUTURES Breakout Session: Overcoming Everyday Challenges

How to talk to others about unique challenges like marriage and family dynamics, talking to your kids about Duchenne, and other everyday obstacles that many families in this community face.

Hawken Miller

Content Strategist

CureDuchenne

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Doug Levine, PT

CureDuchenne Certified Physical Therapist

CureDuchenne

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Barry and Luci Nilson

CureDuchenne Champions and Parents

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2023 FUTURES: Advancing Care Across the Duchenne Journey Part 2

Relevant healthcare providers discuss the most critical advancements and recommendations in their specialty, and answer questions from the audience.

Jennifer Wallace Valdes, PT

CureDuchenne Certified Physical Therapist

CureDuchenne Physical Therapy Program

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Danielle Forrest, OTR, OTD

Occupational Therapist III

Children’s Health and Rehabilitation Services

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Angelena Edwards, MD - Speakers

Pediatric Urologist

University of Iowa Stead Family Children's Hospital

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Kindann Fawcett, PhD

Post Doctoral Fellow

University of Arkansas for Medical Sciences

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Austin Edenfield, ATP

Quantum Product & Technical Education Manager

Pride Mobility

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2023 FUTURES: Advancing Care Across the Duchenne Journey Part 1

Relevant healthcare providers discuss the most critical advancements and recommendations in their specialty, and answer questions from the audience.

Dr. Aravindhan Veerapandiyan

Pediatric Neurologist

Arkansas Children's Hospital

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Kent Williams, MD

Pediatric Gastroenterologist

Nationwide Children's Hospital

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Oscar "Hank" Mayer, MD

Medical Director, Pulmonary Function Testing Laboratory Children's Hospital of Philadelphia

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Merick Yamada, MD

Pediatric Cardiologist Fetal Care Center Dallas | Neurology and Neuromuscular Care Center

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2023 FUTURES: Trailblazers The Future of Care Panel

A panel discussion featuring leading healthcare providers that are making a positive impact on variety of aspects of care for Duchenne.

Natalie Truba, PhD

Clinical Psychologist

Nationwide Children's Hospital

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Pradeep P.A. Mammen, MD, FACC, FAHA

Associate Professor of Medicine and Co-Director

Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center, Director for Translational Research for the Advanced Heart Failure and Transplant Cardiology Program, UT Southwestern Medical Center

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Diana Castro, MD

Associate Professor of Pediatrics, Neurology and Neurotherapeutics

University of Texas Southwestern

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Richard Parad, MD, MPH

Associate Professor of Pediatrics / Department of Pediatric Newborn Medicine Harvard Medical School Department of Pediatrics / Brigham and Women's Hospital

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