Duchenne muscular dystrophy Archives

Sending you off into the FUTURE: Highlights from FUTURES final day

April 23, 2023

The last day of FUTURES 2023 was jam-packed with sessions focused on how people with Duchenne can use their lived experience to help others going through the same challenges. A Game of Life encouraged people to share tips and tricks that work for them, breakout sessions met people wherever they were at in their Duchenne journey, and the closing session was an opportunity for everyone to share what was on their mind.

Advancing care and celebrating life: recapping the top four highlights from FUTURES day 2

April 22, 2023

Today was all about ensuring that boys and adults with Duchenne receive the best care possible. It was also a time for celebration. At the end of the day, CureDuchenne hosted a summer camp-themed party for individuals with Duchenne, parents, caregivers, and anyone tied to the cause.

The six things you need to know from the first day of CureDuchenne FUTURES

April 21, 2023

The first full day of FUTURES has wrapped! In the last couple of hours, we’ve had educational workshops on gene therapy, RNA-based therapeutics, and muscle restoration and anti-inflammatory treatments. Plus, everyone’s had a chance to meet a new person and create relationships that will last a lifetime. It’s been a lot to digest, so here’s the top highlights from Friday at CureDuchenne FUTURES.

All the accessible ways to enjoy San Diego

March 31, 2023

San Diego is one of the most accessible cities in the world, with a fully accessible trolley system laid out along a grid. But there’s still some things that are […]

Hawken’s Perspective: Overcoming a Fractured Femur with Duchenne

March 17, 2023

There’s plenty of times in life where plans fall apart. That’s especially the case if you have Duchenne muscular dystrophy like me. A building you were expecting to enter might […]