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Porter Family
Our son, Grant, was almost 6 years old when he was diagnosed in January of 2017 with Duchenne Muscular Dystrophy. Our daughter Wrenna, and Grant’s best friend, was 4. To […]
Ormiston Family
Where to start? Darren is adopted. He came to us at 2 months old. I immediately requested any and all evaluations available because mom had been using meth while pregnant […]
Nilson Family
Our youngest son, Henry, was diagnosed with Duchenne in August 2011 – shortly before his 3rd birthday. It was a fluke test that shocked even the doctors as it was […]
Munoz Family
In 2013, our oldest son, Joshua, was diagnosed with Duchenne muscular dystrophy. He was 5 years old at the time and we were devastated with the diagnosis. After doing some […]
Foster Family
Our son was diagnosed April 1, 2019. We have spent the past 2 years doing research, completing a clinical trial and being an advocate for our son and Duchenne Muscular […]
Edwards Family
We are the Edwards Family in North Dakota. Our 11 year old son Grant has Duchenne. Diagnosed at age 4. Grant’s younger brother Christian age 8 is unaffected. I carry […]
Cazin Family
We have two sons and a daughter and no family history of Duchenne. In April of 2018, we took our kids to the pediatrician for a well check. We mentioned […]
“DMD Clinical Trials: An Overview” Presentation by TRiNDS
This presentation by Lauren Morgenroth, CGC and Ana Christensen, MPH at TRiNDS is part of the “A Holistic View of Clinical Trials” webinar and covers the following topics: the clinical […]
Exercise and Duchenne Muscular Dystrophy: Part 1
What is the role of exercise in patients with Duchenne Muscular Dystrophy? Special guest, Dr. Aaron S. Zelikovich, MD Original Webinar date: February 23, 2021Please submit your questions or comments […]