The CureDuchenne Time Capsule Video is a beautiful compilation of interviews conducted at the 2019 FUTURES Conference in Anaheim, CA. We asked families to share their stories with us, as […]
La 2da parte incluirá los siguientes temas: Educación para el cuidador Sugerencias para los cuidadores – mejores prácticas físicas, mentales y emocionales Anécdota familia & construcción comunitaria Se le pedirá […]
La 1ra parte incluira los siguientes temas: Acceso al Cuidado Multidisciplinario Guia nutricional para Individuos con Duchenne Programa de Asistencia Familiar Duchenne (Duchenne Family Assistance Program) Se le pedirá que […]
This month’s Catabasis Connection:
Dr. Paolo Bettica’s update about the Italfarmaco Givinostat development program includes progress on the Italfarmaco studies about Givinostat in Duchenne and Becker Muscular Dystrophy then takes your questions about the […]
Get Involved with Project Euphonia Help future generations of people living with motor speech impairments. Automated speech recognition, which powers voice-activated technology such as the Google Assistant, are more common […]
NS Pharma Announcement of Viltepso: A New FDA-Approved Treatment for Patients With Duchenne Muscular Dystrophy (DMD) Amenable to Exon 53 Skipping View this webinar to learn more about Viltepso from […]
Part 3 of the series engages adults with Duchenne and families who have been on the Duchenne journey for more than a few years, or those who could benefit from […]
Part 2 of the series engages families who have carved out their path on the Duchenne journey for a few years, or those who have foundational knowledge of Duchenne and […]
