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Coping as a Family: Discussing Duchenne with Loved Ones
This resource presents advice and resources on how to communicate a Duchenne diagnosis to your family and children.
Video
Creative Inclusivity
An interactive presentation focused on harnessing creativity in day-to-day life with inclusive activities, games and exercises, as well as utilizing adaptive technology/equipment to surpass expectations.
Jennifer Wallace Valdes, PT
CureDuchenne Certified Physical Therapist
CureDuchenne Physical Therapy Program
Danielle Forrest, OTR, OTD
Occupational Therapist III
Children’s Health and Rehabilitation Services
Austin Edenfield, ATP
Quantum Product & Technical Education Manager
Pride Mobility
Video
CureDuchenne 2022 Priorities: Research for a Cure and Care for our Community
Paul, Debra and Hawken Miller discuss FUTURES 2022, current advancements in therapies and next generation investments as well as programs CureDuchenne offers to improve the quality of life for those impacted by Duchenne.
Video
CureDuchenne and NS Pharma: VILTEPSO
This is a pre-recorded webinar with CureDuchenne, NS Pharma and guest speaker Dr. Mathula Thangarajh.
Topics include:
• Clinical evidence to support early initiation of DMD treatment
• The role of exon skipping in the treatment of DMD
• The efficacy of VILTEPSO for the treatment of DMD
• The safety and tolerability profile of VILTEPSO
Mathula Thangarajh, MD, PhD, FAAN
CureDuchenne Cares Educational Webinar: Reimagining Quality of Life in Duchenne
This webinar, in partnership with the University of Kansas Medical Center, explores topics like achieving milestones, quality of life, and setting goals in families navigating Duchenne muscular dystrophy. The panelists also discuss how to incorporate quality of life metrics into clinical care.
Jeffrey M. Statland, MD
Professor of Neurology
University of Kansas Medical Center
Kelli Reiling Ott
Clinical Assistant Professor
University of Kansas Medical Center
Vincent Czerwinski, MD
Medical Student
University of Kansas Medical Center
Video
CureDuchenne Link Presentation
An overview of CureDuchenne Link.
Joanna Kemp, BSN, RN
Senior Director of Clinical Operations | Director, CureDuchenne Link
CureDuchenne
Video
CureDuchenne Research Support and Priorities
Hear from CureDuchenne’s Chief Scientific Advisor on our research support and priorities.
Video
CureDuchenne Webinar with Wave Life Sciences
Wave will provide an overview of initial clinical trial results for WVE-N531 in individuals with Duchenne muscular dystrophy who are amenable to exon 53 skipping, as well as an overview of the potentially registrational FORWARD-53 study.
Anne-Marie Li-Kwai-Cheung, MChem, MTOPRA, RAPS
Chief Development Officer
Wave Life Sciences
Video
Discusión sobre tecnología de próxima generación
¿Que sigue? Discusión sobre tecnología de próxima generación.
Video
