This resource presents a conversation about family dynamics, communication strategies and how to cope as a family unit navigating a Duchenne diagnosis.
Social Worker and Neuro-behavioral Health Specialist
University of Utah Health
This resource presents information on how to cope with mental heath issues like anxiety and PTSD after a medical emergency.
This resources provides a introduction to the common multidisciplinary care team for Duchenne and their individual functions, as well as tips on coordinating this team-based approach.
Child Neurologist and Neuromuscular Section Head
Children’s Hospital of Philadelphia
This resource presents information on the clinical trial process, common clinical trial terms, updated trial processes due to telehealth, and more.
This resource presents information on genetic carrier health, carrier testing options and resources, family planning education, and carrier burden information.
Certified Genetic Counselor
Children's Hospital of San Antonio, Baylor College of Medicine
This resource presents the innerworkings of the DMD gene, Duchenne’s impact on the body, and provides and in-depth view of the pipeline of current treatments for Duchenne.
Edgewise Therapeutics: Focused on Muscle Disease
Developing a novel therapeutic designed to protect muscle in Becker and Duchenne muscular dystrophy
Joanne Donovan, MD, PhD
Chief Medical Officer
Edgewise Therapeutics Industry Presentation
Edgewise Therapeutics is a clinical-stage biopharmaceutical company focused on creating novel precision medicines for the treatment of rare muscle disorders. Our intimate knowledge of integrated muscle physiology at a whole-body level allows us to develop innovative solutions for patients with muscle disease where significant unmet medical need exists. By protecting and improving muscle health, our goal is to dramatically enhance the lives of people living with progressive muscle disorders.
Developing a novel therapeutic designed to protect muscle in Becker and Duchenne muscular dystrophy
