CureDuchenne was founded 25 years ago, and during that time we have witnessed and participated in the approval of multiple FDA-approved therapies, dozens of clinical trials, and an expanding pipeline of investigational treatments. But there is still no cure for […]
Respiratory infections can become serious more quickly in people living with Duchenne muscular dystrophy (DMD) because respiratory muscles weaken over time. Understanding how to recognize symptoms early, use airway clearance techniques effectively, and know when to […]
Just a few years ago, families attending CureDuchenne’s FUTURES 2026 Annual Conference were weighing whether to participate in clinical trials. Today, the conversation has shifted dramatically. With multiple approved therapies now available for Duchenne muscular dystrophy (DMD), […]
Navigating this new 2025 school year is a challenge for anyone. But with a condition like Duchenne muscular dystrophy to contend with, it can become even more difficult. To find success while transitioning to a new school year with Duchenne, it’s important to communicate with teachers, administrators, and staff your needs.
CureDuchenne is here to support you. See these resources to be ready in an emergency.
Disney Parks can be great places for someone with a power wheelchair to enjoy the various characters roaming around the park, rides that you can drive your chair onto, and parades and performances.
We recently visited Disneyland with two Disney fans in power wheelchairs to see how it can be done. While it takes extra planning, strategy, and teamwork from friends, enjoying rides at Disneyland, including Rise of the Resistance, is possible even if you use a power wheelchair.
If you have a desire to drive with Duchenne muscular dystrophy or be a passenger in a wheelchair-accessible vehicle, there are plenty of opportunities to make that dream a reality.
Finding the Right One: Advice from Experts on Dating with a Disability
Justin Skeesuck, a 48-year-old Idahoan featured in the documentary “I’ll Push You,” started losing the use of his hands in 2010. So, in 2012, he moved to Italy. For a […]
