Today was all about ensuring that boys and adults with Duchenne receive the best care possible. It was also a time for celebration. At the end of the day, CureDuchenne hosted a summer camp-themed party for individuals with Duchenne, parents, caregivers, and anyone tied to the cause.
The first full day of FUTURES has wrapped! In the last couple of hours, we’ve had educational workshops on gene therapy, RNA-based therapeutics, and muscle restoration and anti-inflammatory treatments. Plus, everyone’s had a chance to meet a new person and create relationships that will last a lifetime. It’s been a lot to digest, so here’s the top highlights from Friday at CureDuchenne FUTURES.
There’s plenty of times in life where plans fall apart. That’s especially the case if you have Duchenne muscular dystrophy like me. A building you were expecting to enter might […]
CureDuchenne is made up of people from all walks of life who share a common purpose — to find a cure for Duchenne and support all the families and patients […]
Fourteen years ago, I travelled to Russia with my family, just months after our son Hawken had been diagnosed with Duchenne muscular dystrophy. It was very raw for us at […]
Physical Therapist Elina Gonzalez’s intuition has been a driving force in her career. During one of her early cases, a child presented signs of muscle weakness and underdevelopment, but remained […]
After her 10-month-old nephew was diagnosed with Duchenne muscular dystrophy, Karin Gorman was inspired to learn more about the disease and find a way to make a difference in the […]
Haydee Bustos has a passion for helping kids, and through her experience as a physical therapist, she discovered an even deeper desire to help kids with Duchenne muscular dystrophy. […]
Darcy Peach discovered her calling to become a physical therapist while undergoing treatment for a volleyball injury in high school. During her treatment sessions, Darcy’s physical therapist took a […]
