Books are a gateway for us to unlock our imaginations. To see ourselves in the characters that captivate our attention. To let our mind wander to places that wouldn’t have […]
Mother of two boys with Duchenne shares how she’s successfully advocated for her children with a rare disease as a mama bear.
Shopping for someone with a physical disability can seem difficult as this holiday season rolls around. They may not have the same strength or dexterity as other kids and/or adults […]
The silver screen has been featuring more and more stories about people with disabilities, whether it be developmental, physical, or mental. With more representation in popular culture, comes more understanding […]
Volunteering within our community helps us lift everyone around us while making us feel good about our impact in the world. It’s something that is open to anyone, regardless of […]
Halloween is a time of year for candy, trick-or-treating, and of course, everyone’s favorite, dressing up as iconic Hollywood, video game, and pop culture characters. At first thought, donning a […]
Many people with Duchenne or physical disabilities play video games because it’s a way to stay competitive in a less physical environment and connect with friends who may live far […]
CureDuchenne Cares had its inaugural visit to San Juan, Puerto Rico, on June 10 for a workshop on current standards of care for Duchenne, research and clinical trials, family support, […]
The last day of FUTURES 2023 was jam-packed with sessions focused on how people with Duchenne can use their lived experience to help others going through the same challenges. A Game of Life encouraged people to share tips and tricks that work for them, breakout sessions met people wherever they were at in their Duchenne journey, and the closing session was an opportunity for everyone to share what was on their mind.
